|[April 15, 2014]
International Federation of Psoriasis Associations: IFPA, ILDS and IPC Form Partnership to Develop Global Psoriasis Atlas
STOCKHOLM --(Business Wire)--
While studies over the recent years have contributed to an improved
understanding of psoriasis, there are still significant gaps in
knowledge related to the epidemiology of this serious, chronic disease
and trends in incidence over time. The World Health Organization (WHO),
reported in 2013 that the worldwide prevalence of psoriasis is around
2%, but that studies in developed countries have declared prevalence
rates of more than twice the global estimate at an average of 4.6% .
The project's initial task therefore will be to establish a credible and
reliable database recording the prevalence of psoriasis worldwide and by
country. "By gathering data on the prevalence of psoriasis from as many
countries as possible we will be able to form a clear picture of the
burden of psoriasis worldwide and in so doing inform better decision
making on the use of resources," says Professor Wolfram Sterry,
president of the ILDS.
While gathering detailed information on prevalence, the initiative will
undertake to build a framework for improved collection of data on the
burden of psoriasis. In the long-term, the aim is to look at incidence
over time and the burden associated with comorbidities as well as the
economic impact of psoriasis. "The atlas project is about driving
constant improvement in the understanding of psoriasis and encouraging
the ongoing collection of data and research," according to Professor
Christopher Griffiths, president of the IPC (News - Alert).
The development of a Global Psoriasis Atlas is a long-term project that
seeks both to drive continuous improvement in the understanding of
psoriasis and uncover how it affects both the individual and society at
large. Due to lack of evidence, among other factors, recognition of
psoriasis as a serious, noncommunicable, chronic disease that is
widespread and represents a significant public health challenge is poor
- at both the local and global level. Lars Ettarp, president of IFPA
explains that, "building an evidence base that all stakeholders can use
to advocate for improved treatment, access to care and recognition of
psoriasis is a priority. Only once we truly understand the burden will
we be able to command the recognition that people living with psoriasis
About the Global Psoriasi Atlas Project
The objectives of this joint project are to:
· Build an evidence base that stakeholders can use to advocate for
improved treatment, access to care and recognition of psoriasis as a
priority of public healthcare policy.
· Unite all stakeholders on one mutually beneficial agenda that works
towards improving the lives of people with psoriasis and psoriatic
· Encourage collection of data and research into psoriasis that could
ultimately lead to better use of resources, as well as improvements in
treatment and care.
· Enable benchmarking within and between countries by providing all
stakeholders with local and regional evidence that is consistent and
About the partners
The International Federation of Psoriasis Associations (IFPA)
The International Federation of Psoriasis Associations (IFPA) is a
nonprofit organisation made up of psoriasis associations from around the
IFPA unites psoriasis associations so that their global campaign for
improved medical care, greater public understanding and increased
research will improve the lives of people who live with psoriasis and
psoriatic arthritis. Through cost effective, successful and high quality
programmes such as World Psoriasis Day and the World Psoriasis &
Psoriatic Arthritis Conferences, IFPA brings together psoriasis
associations, healthcare professionals and the healthcare industry to
actively pursue the vision of a world without human suffering from
To learn more about IFPA please visit www.ifpa-pso.org.
The International League of Dermatological Societies (ILDS)
The International League of Dermatological Societies (ILDS) is a
non-governmental organisation in official relations with the World
It was formed to:
· Stimulate the cooperation of societies of dermatology and societies
interested in all fields of cutaneous medicine and biology throughout
· Encourage the worldwide advancement of dermatological education, care
· Promote personal and professional relations among the dermatologists
of the world · Represent dermatology in commissions and international
· Organise a World Congress of Dermatology every four (4) years
To learn more about ILDS please visit http://web.ilds.org.
The International Psoriasis Council (IPC)
Founded in 2004, The International Psoriasis Council (IPC) is a
dermatology led, voluntary, global nonprofit organisation dedicated to
innovation across the full spectrum of psoriasis through research,
education and patient care. The mission of the IPC is to empower our
network of global key opinion leaders to advance the knowledge of
psoriasis and its associated comorbidities, thereby enhancing the care
of patients worldwide.
To learn more about IPC visit www.psoriasiscouncil.org.
 World Health Organisation. Psoriasis report by the Secretariat.
Executive board, 133 session, provisional agenda item 6.2. 5 April 2013.
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